IgCares Charities

Immune Deficiency Foundation

The Immune Deficiency Foundation (IDF), founded in 1980, is the national nonprofit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency (PI) through advocacy, education and research. There are approximately 250,000 people who are diagnosed with PI in the U.S., and thousands more go undetected.

Individuals affected by PI often find it difficult to receive proper diagnosis, treatment and specialized healthcare. IDF estimates that the average length of time between onset of symptoms and diagnosis is between nine and 15 years. Patients also experience difficulties financing their healthcare, finding educational materials on the disease and locating others with whom to share their experiences. IDF helps individuals overcome these difficulties.

Donate Now Visit https://primaryimmune.org/ to learn more.

Jeffrey Modell Foundation

Vicki and Fred Modell established the Jeffrey Modell Foundation (JMF), a 501(c)3 nonprofit organization, in 1987, in memory of their son Jeffrey, who died at the age of fifteen from complications of primary immunodeficiency (PI) – a genetic condition that is chronic, serious, and often fatal. JMF is a global patient organization devoted to early and precise diagnosis, meaningful treatments, and ultimately, cures - through clinical and basic research, physician education, patient support, advocacy, public awareness, and newborn screening.

As a Foundation, JMF understands how important it is to have a strong focus in everything they do. So each and every day, they keep their minds and their hearts set on:

• Making a world of difference in the lives of patients with PI.
• Affirming their absolute commitment to clinical and basic research in order to better understand and treat PI.
• Serving as a national and international source for the dissemination of information and education into the diagnosis and treatment of genetic immunodeficiencies.
• Serving as a tireless, compassionate advocate on behalf of patients and families to assure their access to excellent and comprehensive care.
• Promoting public awareness of PI diseases through programs involving lawmakers as well as lay, scientific, and medical communities.
• Affirming their commitment to turn pain, despair, and suffering of immunodeficient children and adults into comfort and hope.
• Their Journey of Hope, Advocacy & Action

Donate Now Visit http://www.info4pi.org/ to learn more.

Foundation for Primary Immunodeficiency Diseases

The Foundation for Primary Immunodeficiency (FPID) was established in the U.S. to support the education, early diagnosis, genetic counseling, therapy, and research of primary immunodeficiency (PI) in both India and the U.S. The Foundation supports many activities in the U.S. and India, and has established FPID Centers in India.

The Foundation has established the Thomas Waldmann Award for Excellence in Human Immunology to recognize Dr. Waldmann’s contribution to the understanding of primary immunodeficiency. This award is given annually to an outstanding immunologist/cell biologist who has made major contributions, directly or indirectly to primary immunodeficiency.

Their mission is to support education, diagnosis, treatment, and research in PI in India and the U.S.

Donate Now Visit http://fpid.org/ to learn more.

International Patient Organisation for Primary Immunodeficiencies

The International Patient Organisation for Primary Immunodeficiencies (IPOPI) is the association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PI) patients worldwide through global collaboration.

The decision to create IPOPI emanated from an interim organising committee meeting in Oxford, U.K., in 1990. Two years later, in 1992, IPOPI was formally established in Lugano, Switzerland. IPOPI has grown significantly in recent years with more countries represented than ever before and an increasing amount of activities reaching out to all regions of the world.

These activities include advocacy, awareness, development and more recently clinical care projects, all of which are carried out in pursuit of IPOPI’s mission.

Donate Now Visit https://ipopi.org/ to learn more.